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Down's Syndrome Care at Home
Down Syndrome is a lifelong genetic condition that causes intellectual disability, distinctive facial features, and certain physical problems. Down syndrome care can be challenging for any family member who has to take on the responsibility of caring for their elderly parent with Down Syndrome at home. Luckily there is a 24 7 care agency that provides assistance when you can’t keep up anymore.
What is live-in care for Down Syndrome care?
Down Syndrome is a lifelong genetic condition that causes intellectual disability, distinctive facial features, and certain physical problems. Down syndrome care can be challenging for any family member who has to take on the responsibility of caring for their elderly parent with Down Syndrome at home. Luckily there is a 24 7 care agency that provides assistance when you can’t keep up anymore.
This article will provide you with some helpful tips and important information on how to care for an aging person with Down syndrome.
Taking care tips for Down syndrome parents
Down syndrome care for elderly parents can be challenging because of the need to provide physical and emotional support. Especially if you are trying to go on with your own life, but still want to make sure that your parent is happy and healthy. These are some caring tips that you and the home care assistant need to remember.
If you are caring for your parent with Down Syndrome at home, try not to get overwhelmed by all that needs to be done as it will become a full-time job. Get help, when necessary, from family members or friends who live nearby so they can assist with things like housekeeping tasks and appointments. Or, hire an elder care agency to assist you when you can’t.
They must give moral support too, especially if their loved one has behavioral problems or mood swings due to dementia which commonly occurs in older people with Down syndrome.
Monitoring their health is also essential
Remember that many elderly people have chronic health conditions such as high blood pressure, heart disease, and diabetes meaning there's an increased risk of hospitalization. Their health condition can weaken or change at any given moment.
Some of the health problems that you need to know about elderly down syndrome people can struggle with
In order to take correct care of your down syndrome parent, you need to know the health problems they are facing. The sooner you know more about their health problems, the better you and the elder care agency can take care of your parents. Some health problems elderly down syndrome people can have is
Arteriosclerosis of the arteries supplying blood to the heart muscle (coronary artery disease)
Atherosclerotic peripheral vascular disease with claudication, which can lead to gangrene and amputation.
Down Syndrome Care for elderly parents at home is important so they are cared for in their final years as well as giving them a high quality of life. It's beneficial that family members take on this caregiving role even if it means adjusting their career plans or moving closer to help out more often when needed. With love and attention, everyone will adjust accordingly. When things are getting too hard, you can arrange with family members for assistance, or you can hire a 24/7 care agency that will provide all the assistance when you can’t. Then, you just need to give attention and love to your down syndrome parent for as long as possible.
How it works
Arranging care in three steps
Tell us what you need
A friendly, no-obligation call to understand the situation, explain how the care works and give you an estimated weekly cost.
Choose your carer
We send profiles of available carers matched to your needs. You can speak to them on a video call before deciding.
Care begins at home
Your carer moves in and support starts, with a named care manager checking in regularly to make sure it's working.
Free callback
Prefer we call you?
Leave your number and a care manager will call you back — usually within an hour, and always free.
- No obligation. A conversation, not a sales call — and never a call centre.
- A real care manager. Someone who arranges care every day, who can answer properly.
- Just two details. Your name and number — we don’t need an email address.
Or call us now on 0800 368 8558 Lines open 8am–10pm, seven days a week
Common questions
Questions about down's syndrome care
What families ask us before arranging care.
Not seeing your question?
Our care managers answer these every day. A no-obligation call takes about ten minutes.
0800 368 8558Lines open 8am–10pm, seven days a week See all questionsHow much does care for down syndrome adults cost?
Prices for care for down syndrome adults start at £1,200 a week. That is one fixed weekly fee covering everything in the agreed care plan, rather than an hourly rate that rises as needs grow. For couples, one carer can support two people under a single fee. See our pricing page for the full breakdown, or use the cost calculator for an estimate based on your own situation.
How quickly can care start?
In most cases we can have a carer in place within a week. For urgent situations — a hospital discharge, a fall, or a family carer suddenly unable to continue — we can often arrange cover within 24 to 48 hours.
Who will the carer be, and do we get a choice?
You choose. We send profiles of matched, available carers and you decide, including a video call beforehand if you would like one. It is the same carer each day rather than a rota, so they learn the routine and notice small changes early. Every carer is enhanced DBS checked, referenced and interviewed in person before we introduce them.
What does the carer actually do day to day?
Personal care, medication prompting and administration, meal preparation, light housework, laundry, shopping, appointments and companionship — all shaped around the agreed care plan. The aim is that daily life continues as normally as possible, in familiar surroundings.
Is this better than moving into a care home?
It depends on the person, and we will say so honestly if a care home is the better answer. What live-in care offers is one-to-one attention rather than shared staffing, no upheaval from a familiar home, pets and routines kept, and visitors whenever you like. For couples it is usually far better value than two residential placements.
Can we get help paying for it?
Often, yes. Depending on circumstances and where you live, support may come through a local authority assessment, NHS Continuing Healthcare, Attendance Allowance or a personal budget. Our funding guide explains what to apply for and in what order, and our care managers will talk it through without obligation.
Where we work
Down's Syndrome Care across the UK, Scotland & Ireland
We arrange care in 800+ towns and cities. Choose your area for local pricing, funding and how care is regulated where you live.
- Carers travel to you — they move into the home rather than driving from a local branch, so rural and coastal areas are covered too.
- The same weekly price everywhere — care is priced on the support needed, never on your postcode.
- Care can start in 24–48 hours in most areas, and often the same day after a hospital discharge.
Can’t see your area? Call 0800 368 8558 — we almost certainly still cover it.